Happy Happy Joy Joy!

We just made it back home from meeting with the allergist at our Children’s center. I have a feeling of hope, relief, of well… yay, lol. Their whole team is fantastic. They did their job! They talked to me about EoE and explained it in a way I’ve never heard before. The doctor used a sock and pipe analogy. It totally made sense for the first time. He said that the esophagus was supposed to be like a sock, expanding and contracting to suit the food that goes down. In EoE patients, the esophagus turns into a pipe, making food very difficult to go down. He told us to avoid the top 8, validating my concern with wheat and soy. Then he gave pork back to us. Then the dietitian sat down with us and worked with me to figure out what all we could do to help Maya. I left with a plan and not feeling alone. I was very impressed and sooo very grateful. They also gave me a bunch of websites that I will share with you in a separate post so they will be easy to find.

This is the first time I have felt hopeful in a long time. This is the first time since October that my brain isn’t reeling and I feel like I can breathe. I keep taking good long deep breaths and enjoying the sensation. It’s a good day 🙂

So, to expand on the update, we are to avoid the top 8 allergens which are: dairy, egg, fish, shell fish, peanuts, tree nuts, soy, and wheat. We already avoid everything but soy and wheat, so that transition ought to be relatively simple. We are also going to be adding in Neocate powder in smoothie form three times a day to supplement the calories, protein, and fat that are absent from her current diet. Maya has lost weight in the last month being on her highly restrictive diet, so we want to reverse that and get her back on the growth charts.

And with that, I hope you all had a lovely day! Tomorrow is grocery day, so I’ll have a post up with our grocery picture sometime tomorrow afternoon.

See you then! 🙂

~Lindsey

 

 

EoE Update

EoE Saga Update

The past few days have been incredibly frustrating in our EoE saga. Maya has been refluxing like crazy, even with her EoE medication and Nexium and elimination diet. Makes me wonder what the point of the medication is when stomach acid is coming back up and washing it away. I called our dietitian two Fridays ago to ask about alternate protein sources. (Right now Maya can have no meat, egg yolk, or nuts, soy gives her incredible eczema, and I’m struggling trying to come up with good alternatives)

I was thinking wheat was a trigger, but she did not test positive to it, and the reflux isn’t really worse after she ingests it than when she ingests anything else. I tried a gluten free breakfast cookie and the reflux was worse than I’d seen it at that time. But then again, the reflux after the portobello burger (with a wheat bun) was the worst I’ve ever seen thus far.

Well, when I told the dietitian about Maya’s current restrictions and that the medication wasn’t working, (Maya actually says it’s worse now) she told me to call the GI doctor and tell them what was going on, because it sounded like we needed to alter treatment NOW. So I called, left a message, and waited. I heard back from them last Tuesday, and they want us to go see their allergist on site to get Maya a prescription for a supplemental protein formula. That appointment is set up for Wednesday afternoon (tomorrow). She also told me to keep on our current plan until they see her in mid February.  I can’t begin to tell you how frustrating this is! There is no progress that I can see. We have projectile reflux going on here. It’s even lasting longer than it was before we started our medications. So we have worsening symptoms.  This is pretty much where my head has been the past few days. To be honest, it makes the kitchen feel like a war zone to me. It feels like everything I have in there is harming my daughter and I don’t have a clue what to do next.

I’m trying to come up with good road food with Maya’s limited diet and am working on some ideas. The doctor we will be seeing tomorrow is a couple of hours away from us, and the appointment is scheduled for the late afternoon so dinner on the road will have to be had. My husband suggested that I keep in mind we have a camp stove. 🙂 I love that man, I hadn’t even thought of that.

Sorry for the scattered and slightly random post. Just keeping it real here. This is part of real life in a house with multiple food allergies and EoE. Fun right?

Thanks for stopping by!

~Lindsey

 

Menu Plan Monday!

It’s time again for Menu Plan Monday over at Organizing Junkie!

Here’s what I have planned through Wednesday. Wednesday we meet with an allergist at the leading children’s hospital in our region and Maya’s diet will likely change significantly. Again. Thursday is also my regular grocery shopping day, so that works out nicely 🙂

Breakfasts:

Lunches:

  • Leftovers
  • Beans and Quinoa

Dinners:

  • Chili con Carne
  • Something creative and yummy with boneless skinless chicken breasts….with potatoes and some other sort of side….
  • Breakfast for Dinner

Maya Suppers

  • Beans, lots of beans, as it’s her only great source of protein right now
  • “Egg” Drop Soup from VegWeb
  • She’ll have plenty of leftovers.

Maya Update:

I’m trying to feed her very mild, non acidic foods right now as her reflux has worsened considerably. After speaking with the allergy dietitian I was told to take Maya to the allergist they have on site so all the doctors needed for her care could be on the same page and have easy access to each other so we can get some help in feeding/treating Maya. Right now her food is severely limited and I’m very worried about protein, B vitamins, iron, and calcium deficiencies. Just about anything substantial and filling gives her projectile reflux, thus the very mild menu this week. Your prayers would be much appreciated as we meet with yet another set of doctors to try and help Maya.

Happy planning and be sure to check out Organizing Junkie for more menu ideas!

Loaded Potato Soup (Dairy Free!)

 

 

 

 

 

*This is kind of a non recipe recipe. I don’t measure my spices, I just throw them in, taste, and adjust accordingly.*

Loaded Potato Soup

Ingredients:

6-7 cups peeled, cubed potatoes

1 large onion, diced

Salt to taste

Pepper to Taste

Onion Powder to taste

Garlic Powder to taste

Mrs. Dash Extra Spicy Blend to taste

Earth’s Balance Buttery Spread

6-8 Slices Bacon, crisped and crumbled

Directions:

Boil potatoes and onions until potatoes are fork tender. (approximately 16 minutes) Don’t drain! Add in the Earth’s Balance, I used about 1/2 a cup, and your spices and mash until soupy. Taste and adjust until you have the flavor you want, serve, and garnish with bacon crumbles.

So this recipe isn’t really a recipe so much as a springboard for ideas. Next time I think I might add browned sausage and forgo the bacon to make it a more filling meal. If you have broth on hand, like vegetable or chicken broth, drain those potatoes and replace the liquid with that! I can’t do chicken and I was out of veggie broth, so I just used the starchy cooking water.

Another way to make this is to use leftover mashed potatoes. That’s essentially what we made here, just soupified. Yes, new word, haha. I would  add water or broth, spices to taste, and sauteed onions to the mashed potatoes and just make soup from that. Super easy, right?

I hope this ‘recipe’ is helpful to you! Take the idea and run with it! It’s another totally adaptable, customizable dish that you can tailor to fit your needs without much effort! Enjoy and please let me know how it goes!

As always, if you have any questions or need anything, you’re welcome to contact me! Look in the About page and you’ll see my contact information 🙂

Have a happy day!

~Lindsey

Weekend Baking

I have the oven going today in preparation for the coming week. There’s a bulk batch of granola in the oven right now and a bulk bread recipe is on it’s first rise. It feels good and wonderfully domestic to be getting a little ahead in our baking 🙂 It also smells heavenly in here. We have several unknowns and a busy week coming up, so I wanted to get some things done today. We also have company coming over later today, and the house smelling yummy is always a good thing!

I had a lovely helper in the kitchen this morning. He loves to help me in the kitchen. I try to let him help as much as I can so he’ll know how to handle himself in the kitchen with his dairy allergy. Granted, the time in the kitchen magically extends when I have little helpers, but I know that allowing them to help will equip them with much needed skills later on.   (This is his ‘helper’ face I suppose, lol, very serious, and by the way, that’s my youngest, Joshua!)

Speaking of helpers in the kitchen, we’ll talk some more about bringing your kiddos in with you and keeping things safe for them so they can help with wild abandon and you won’t be stressed in the least!!! Doesn’t that sound magical? 🙂

Happy weekending!

Oh! Before I forget, the potato soup recipe is in the works, just have to finish formatting it! 🙂 It’ll be posted later today.

I Present: The Cupcakes

We had a lovely birthday celebration yesterday! We enjoyed family, laughed  harder than I remember laughing in my life and ate some really good food!

I used the Divvies Famous Chocolate Cupcake recipe that I found on Allergic Kid a while back when she reviewed the Divvies Cookbook (sigh, I so want that cookbook), along with a fantastic chocolate buttercream frosting from Epicurious. We then covered them in sprinkles and topped each with a Maraschino Cherry. Divine!!!!!! Oh, and by the way, this is all VEGAN! Totally safe, and nobody even knew they were egg and dairy free!  Woo!

We made the cupcakes up on Tuesday afternoon so they would have a day to sit. Trust me, let them sit a day, the flavors will meld and become even more delicious and it’s then that you can’t tell they’re vegan.  It’s pure awesomeness.

I took a lot of pictures of these things, but my point and shoot simply couldn’t portray the simple beauty. I hope you can see from the picture at least somewhat how gorgeous these cupcakes are.

My suggestion: Go make these! The recipe is super easy, you will love it, and so will all your family and friends. (as long as they like chocolate and/or cake of course ) 😉

Happy Baking!

~Lindsey

 

It’s a Birthday!!!

It’s Birthday Time!

Today is Jesse’s fifth birthday! Woohoo! I can’t believe he’s already 5! Daddy took him out for breakfast this morning.  He got a sprinkle doughnut and a cinnamon roll 🙂 That’s a very special treat for him as he usually has to eat what Maya and Joshua eat. Jesse doesn’t have any food allergies that we know of so we like to treat him when we can.

Later on today we’ll enjoy cupcakes and yummy daddy grilling and have some family over to celebrate.

I’ll share photos and recipes and such later today or tomorrow!

Happy Wednesday Everybody!

~Lindsey